Sunday, August 14, 2011

Intro

Keeg is my 14 year old son. This blog will be about his journey. His journey with chronic health problems, severe environmental and food allergies, and suspected Asperger's.

Background info:

Keeg was born full term at 9 and 1/2 pounds and 23 inches long. He had breathing issues at first and it was 45 minutes before the doctors were able to get him breathing well on his own.

At one month old, Keeg turned blue and I rushed him to the ER. Three days later it was determined that he had situs inversus totalis (all his internal organs on on the opposite side of his body) and severe acid reflux with projectile vomiting.

The first 4 years of Keeg's life, he suffered from febrile seizures. He would go from a normal temperature to a temperature upwards of 104 degrees within a few minutes. The fast rising temperature would trigger the seizures.  The highest temperature he had was 106.8

At 4 years of age, I went to wake Keeg one morning only to find that he was completely lethargic. He could not talk, sit up, walk, or even swallow. We went to the ER where he was admitted and numerous tests run, but the doctors could never pinpoint the cause of his severe lethargy nor his constantly changing labs. This scenario has continued to be repeated a couple of times each year. Yet, despite more hospitilizations then I can count over the last 10 years, the cause of his recurring fatigue is unknown.

Keeg suffers from migraines that rage anywhere from several times a month to several times a week. His migraines are severe and he's not responded to any of the typical migraine medications.

About 2 years ago, Keeg started exhibiting other problems. He became consumed with reading, having to read every written word he sees (even the tags in clothing). He started to have difficulty with day to day task and struggled with social interactions. Recently we got a referral to have Keeg evaluated for Asperger's.

Although I'm writing this initial post, I hope that Keeg will be able to use this blog to help others see the world from his eyes. Keeg has a unique perspective and I think the world would be enlightened by hearing it.

Please continue to pray that we find a way to help Keeg with his health issues as they've gotten increasingly worse of late. We are praying for healing for Keeg!

Thank you for following Paths From Keeg's Soul.


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