Keeg's hematologist has determined that his spleen is enlarged and his labs are "abnormal". He has referred him to a rheumatologist and mentioned Marfans.
Keeg's immunologist is referring him to a geneticist.
Basically both doctors have said they see lots of issues, but cant' figure out a cause. Right now we're waiting.
Keeg went and got fluids through an IV yesterday as well as phenergan to help with his vomiting. Hopefully it was a virus, and not another "symptom". He's feeling a bit better today, and is able to eat with nausea medication. He's very weak and tired.
The ENT is fabulous. He did a camera probe of some sort that showed that Keeg has severe acid burns in his throat. He said this is due to severe acid reflux, and was shocked that Keeg wasn't in severe pain. I'm guessing the reason is due to his sensory issues. The ENT said there is a possibility of cilia mobility issues, but does not want to do a biopsy at this point due to Keeg's health. He said that since we're not battling lung infections, we can skip the biopsy at this point. He also thinks a geneticist is a great idea.
I'll update more as I learn more.
